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Latest / Mission Matters Innovation with Adam Torres

Parent-Led Science: Ana Rita Moreira’s Fight for Rare Disease Research

In this Mission Matters Milken Conference Series episode, Adam Torres interviews Ana Rita Moreira, Executive Director of v-ATPase Alliance. Ana Rita shares how a rare diagnosis for her son led her to found a nonprofit that collects critical data to drive research for ultra-rare genetic conditions. Through grassroots collaboration and strategic advocacy, her organization is filling the scientific gap where few others will. Follow Adam on Instagram at https://www.instagram.com/askadamtorres/ for up to date information on book releases and tour schedule. Apply to be a guest on our podcast…

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