Journey of Hope, Faith, and Determination (Ep01)

HOPE BLVD · Jun 12, 2026 · 15m

I suddenly became paralyzed from the neck down and nobody knew why. I spent 8 months in the hospital. I was a medical mystery. After exhaustive research from a tertiary hospital, I learned I have a genetic rare blood disorder called Porphyria. My type is called Variegate Porphyria, a form of Acute Hepatic Porphyria. Symptoms during an attack for me begin with excruciating abdominal pain, neurological issues and nausea.I had one setback after another. I was admitted to ICU multiple times, with near-death experiences. I was told there was no hope. My family was told to prepare to say goodbye to…