Latest / The Lila Rose Show / E169: The Truth About Assisted Suicide w/Dr Charlie Camosy
Transcript
- 0:00As we reported Monday, California has now become the
- 0:025th state to legalize a so-called right to dialogue.
- 0:06A bill expanding access to assisted death has received
- 0:09royal assent. Just approved a bill to legalize
- 0:12assisted dying after hours of debates, data.
- 0:16Hello, everybody, welcome back to the Lila Rose show.
- 0:18Today we've got breaking news out of the United Kingdom.
- 0:22Parliament has just moved forward to approve assisted
- 0:26dying, as they call it in the UK.
- 0:28That's assisted suicide, meaning healthcare professionals can
- 0:31help kill patients who want to commit suicide.
- 0:34Absolutely tragic and heartbreaking.
- 0:36We're going to be unpacking what this means with bioethicist and
- 0:40author and professor Charlie Komosi in a few minutes, but I
- 0:43wanted to give a few more headlines that are really
- 0:45important about the emerging picture in the Western world,
- 0:49where the Western world, Western civilization, is on a suicidal
- 0:54mission, a mission for self destruction, where one country
- 0:59after the next increasingly is legalizing suicide.
- 1:03Imagine that you're driving over a bridge and you see some
- 1:07commotion on the side of the road.
- 1:08There's a man standing on a ledge about to jump off to his
- 1:11death, clearly a troubled person.
- 1:14And so there's police officers, there's passerby's who are
- 1:18standing there trying to coax him off the ledge.
- 1:20This is civilization at some of its best moments, people coming
- 1:24around together to try to help somebody on the brink of death,
- 1:28literally trying to kill themselves and instead trying to
- 1:31help them save their life. And why?
- 1:33Why do we do that? Because we value human life,
- 1:36because human life is sacred. And nobody, not even the
- 1:40individual, has the right to take a life, including their
- 1:43own. That is the operational
- 1:45assumption of Western civilization.
- 1:48Human life is sacred. We should organize society to
- 1:51protect human life. Human life is worth fighting for
- 1:54and that nobody, especially not doctors, have the right to kill.
- 1:58In fact, they have a responsibility to heal and to
- 2:01help. This doesn't mean that we make
- 2:03an idol out of life. We know that death is a part of
- 2:05life, but there is a tremendous moral difference between taking
- 2:09a life and allowing a life to die naturally.
- 2:13And this distinction is of course at the root of all
- 2:16ethical questions that are being made daily in hospitals dealing
- 2:20with terminally ill patients or patients near the end of their
- 2:23lives. So in the UK this last week, in
- 2:25a 330 to 275 vote, so this was a margin of just 45 votes, the
- 2:31House of Commons voted to allow the Terminally Ill Adults Bill,
- 2:35which would grant the option of assisted dying, they call it, in
- 2:38England and Wales with terminal diagnosis and a life expectancy
- 2:41of six months or less. Now, this is actually very close
- 2:45to what California currently has on the books.
- 2:48So in the state of California, there is a law which permits
- 2:52people to take their lives with the help of medical
- 2:55professionals, provided that they are given only six months
- 2:58to live by their doctor. They're 18 years old and they
- 3:01have chosen this. I want to read briefly from an
- 3:03article written by a woman whose husband committed suicide with
- 3:07the help of a doctor in California just this last year.
- 3:11And I thought this was a powerful depiction of what we're
- 3:13really talking about. She says that he was very sick.
- 3:16He was suffering from stage 4 lymphoma.
- 3:18He wanted to end his life. And she goes on to say that they
- 3:23requested this appointment and they sit down and he takes this
- 3:26drug to kill himself. And she says, specifically, we
- 3:29set up a comfortable outdoor space on the patio.
- 3:32Gary was able to say goodbye to everyone he loved.
- 3:34He was enshrouded in a bubble of love, she says.
- 3:38She says I couldn't function. It was all too emotional.
- 3:41Beautiful plants and flowers surrounded him.
- 3:43He sucked on a popsicle to mask the bitter taste of the
- 3:46medication. He passed out almost
- 3:48immediately. She says it was as dignified as
- 3:52anyone could want. Again, very subjective, but she
- 3:57says yet the thought of it still burns.
- 4:00I hope our story helps Californians better understand
- 4:02their options. This is an example of trying to
- 4:06paint it in the very best light. Somebody who took a drug to kill
- 4:10themselves on their porch with the help of a doctor in the
- 4:12state of California. And she says even though this
- 4:15was dignified, she claims the wife, the thought of it still
- 4:18burns it. It burns because you were there
- 4:21at the murder of your husband, at the suicide of your husband.
- 4:24And we see that in all of the arguments made for us, this is
- 4:28dying. And we're going to get into some
- 4:29of the best arguments made for assisted suicide.
- 4:32Charlie is going to discuss them on the show in just a few
- 4:34minutes. You see, at the core, what we're
- 4:36dealing with is the killing. It is the killing of a
- 4:40vulnerable patient. And I want to take a look too,
- 4:43for you all about what's happening in Canada.
- 4:46Canada has increasingly been legalizing assisted suicide and
- 4:51increasingly legalizing it not just for people who are
- 4:53terminally ill physically near the end of their lives or over
- 4:56the age of 18, but also for people who choose to commit
- 5:00suicide and get have the doctor help them even for quote UN
- 5:03quote social reasons. This is an article from the
- 5:06Guardian, and it says an expert committee reviewing euthanasia
- 5:09deaths in Canada's most populous province has identified several
- 5:13cases in which patients asked to be killed in part for social
- 5:17reasons such as isolation and fears of homelessness.
- 5:23So to horrifically tragic people dying because they're feel alone
- 5:28and because they don't have a home.
- 5:31And so they asked to have a doctor help them kill
- 5:34themselves, basically have a doctor murder them because they
- 5:36don't have a home. This is inevitably where
- 5:40assisted suicide leads is it does lead to euthanasia.
- 5:45It leads to people who are weak not just because they're near
- 5:48the end of their life physically, but sometimes
- 5:50mentally weak or sometimes even mentally incapable.
- 5:54And we're going to actually talk about that with Charlie.
- 5:56A case of a woman who was suffering from dementia and she
- 5:59fought against her family and the doctor trying to give her a
- 6:02lethal injection, and they prevailed and killed her.
- 6:05This is the direction that Western civilization will go if
- 6:09we don't stop it. And so I'm sharing this episode
- 6:12with you as a urgent NEWS UPDATE about what is happening right
- 6:17now in the West. We're going to be deep diving
- 6:19this more in future episodes, but here's my conversation with
- 6:23Charlie Kamosi, bioethicist, professor and author of eight
- 6:27books. Charlie, thanks so much for
- 6:29joining the podcast. Hi, Lila, good for you to be
- 6:31with you. Did I get it right?
- 6:33Is it 8 books now? It is 8 with two on the way
- 6:37working in a way at those two as well so.
- 6:40Amazing. Congratulations.
- 6:42For those that aren't familiar with your work yet, Charlie,
- 6:45give us a little bit of background on yourself and your
- 6:47work. Well, I've been in the Academy
- 6:50now for almost 16 years and I am a moral theologian and
- 6:54bioethicists and for a long time spent most of my time on
- 6:59beginning of life issues. I wrote a book called Beyond the
- 7:01Abortion Wars and really thought long and hard about how to try
- 7:06to win the pro-life movement, inspired by people like you and
- 7:09others at Live Action, but also in the academic world.
- 7:14And one of those people I engage in the academic world is a
- 7:18philosopher named Peter Singer, a secular philosopher who you
- 7:22might think a pro-life academic like me wouldn't have much in
- 7:24common with. But on the end of life issues
- 7:26we're talking about today, the beginning of life issues we're
- 7:29going to talk about some other time and many other issues.
- 7:32I think the engagement with secular bioethics is so
- 7:35important because it really shows the kind of dark places
- 7:38that we're headed right now. So let's start there with the
- 7:41dark places we're headed because that's the headlines just a few
- 7:44days ago coming out of the UK. And then there's, you know, news
- 7:48stories cropping up here in California about a push to
- 7:51legalize assisted suicide in California.
- 7:55There is already some law legalizing it in very rare
- 7:58cases, but it's there's a push to do more of that.
- 8:01Can you start us with the lay of the land?
- 8:03This is a big question, but what is the general Western world
- 8:07looking like when it comes to permitting assisted suicide?
- 8:11And also give us a definition of what we're talking about for
- 8:14people's clarity. There is a lot of I think
- 8:17misunderstanding today and and when the definitions are not
- 8:19clear. That's how I think
- 8:21unfortunately, that the lobby to legalize assisted suicide can
- 8:25get away with literally, I believe murder, but give us give
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- 9:30So, so maybe start with what this even is.
- 9:33So let's try to define what assisted suicide is.
- 9:35Assisted suicide is the participation of a healthcare
- 9:39provider usually, but not only a physician to help somebody kill
- 9:43themselves to, to commit suicide.
- 9:45I, I tend to use the word killing.
- 9:47I talk about physician assisted killing even more because
- 9:50sometimes in, in, in circumstances there isn't a kind
- 9:53of cooperation of the individual.
- 9:56So for instance, in a case where someone has dementia early on,
- 9:58this happened in the Netherlands a few years ago, someone with
- 10:02early stage dementia said, hey, I want physician assisted
- 10:04suicide. And then later as a progress of
- 10:07the disease went forward, when they gave it, they gave them the
- 10:11deadly drug. It didn't kill them right away
- 10:13and they were struggling and they were pushing back against
- 10:16the attempt to kill them. And so I think it's better
- 10:18described as physician assisted killing, which is also a kind of
- 10:21euthanasia. If we're going to talk about how
- 10:23this is spread, how this is going sort of right now, the
- 10:27United States is a pretty complicated place when it comes
- 10:29to it. A significant number of states
- 10:32have legalized it, but a significant number of also kept
- 10:36it at Bay. So we're my current book
- 10:38project, the title of working title is A Culture on the Brink.
- 10:42So I think we're on the brink in the United States of sort of
- 10:44tipping one way or the other on this.
- 10:46And I do think there is interesting places where this
- 10:49isn't being legalized. So in deep blue states out here
- 10:51on the East Coast where I work, New York, Connecticut, Maryland,
- 10:56have all rejected it for many years now.
- 10:58In fact, I've rejected it. Other states like California,
- 11:02New Jersey, where I live, Oregon, Washington, there's been
- 11:07some slippage, some really bad slippage on this in Europe.
- 11:11Certain states, countries there have had it for quite a while,
- 11:14the Netherlands and Belgium and Switzerland has the something
- 11:20called Dignitas, which is essentially assisted suicide
- 11:22tourism, where people who have had it illegal in their country
- 11:26or their state can go and get it done.
- 11:28In Switzerland, that's been around for a while.
- 11:31But as you point out, there was a big vote recently in the
- 11:34United Kingdom, a first vote, I guess I'm not an expert on UK
- 11:38politics, but I think they have to go through a couple more
- 11:39votes to formally legalize it. But the first vote there was a
- 11:43slippage in the United Kingdom, which is a big, big development
- 11:46as well. So the slippage that's in the
- 11:49news right now in the United Kingdom, as you call it, the
- 11:51slippage towards, you know, don't going from the brink,
- 11:54plunging into the abyss of of a culture of death.
- 11:58My understanding is the Prime Minister has said that he would,
- 12:01you know, sign into law. I don't know exactly how British
- 12:04politics works as well, but he would ultimately say yes to a
- 12:08law that Parliament would, would want to approve assisted suicide
- 12:12in the sit in the country. So it looks like, you know, what
- 12:16is there hope in the UK that they'll be able to stop this.
- 12:19I, I understand the vote was very close.
- 12:22What do you know about what's going on in the UK right now?
- 12:25What I've I've read is that it, what passed was something called
- 12:29the second reading and it still needs to be passed, I think by
- 12:33the House of Lords and also by a third reading in the House of
- 12:37Commons. And what I've seen, I don't know
- 12:39how real this is, but there's some hope out there that I've
- 12:41seen, which is I think a number of people, MPs, members of
- 12:46Parliament voted for this in part to continue the debate and
- 12:51may in fact be persuadable to vote against it in the third
- 12:53reading. And so the vote was actually
- 12:55close enough that the number of people who did that could in
- 12:57fact change their minds. Now, I'm not, I'm not a
- 13:00political insider of any kind when it comes to this.
- 13:02I don't know what could happen. But it signs point to not so
- 13:06good right now, but maybe not totally despondent.
- 13:08What is the steelman argument to make for assisted suicide?
- 13:11What are the arguments that folks are currently making in
- 13:15the UK to say we need to have this, we shouldn't have to
- 13:17travel to Switzerland and do a tourism.
- 13:20If we want to end our lives, we should be be able to do this.
- 13:22This is the humane thing to do. What I'm going to give you the
- 13:26Steel Man argument. I don't think it's the most
- 13:29common version of the argument. I think the most common version
- 13:32is a pretty bad argument, which is people should just sort of be
- 13:34able to do what they want, right?
- 13:36That's just sort of a straight up no chaser autonomy.
- 13:39I get to do what I want regardless of who that hurts,
- 13:41regardless of the kind of society produces, regardless of
- 13:44what that does to the very concept of medicine itself.
- 13:47I get to do what I want because I'm autonomous and I'm strong
- 13:51and I can make these decisions. It's a terrible argument.
- 13:54We can get into reasons for why that's terrible, and I suggested
- 13:56some of them just now. But maybe if we're going to
- 13:58steal man, the argument would be something like this.
- 14:02There are disadvantaged people who don't have access to the
- 14:06best palliative care, the best pain management, and they die in
- 14:10some cases in very terrible agony.
- 14:12And who in their right minds and in the right heart could sit
- 14:18back and watch that happen? Who would not want to intervene
- 14:22to protect individuals, to help give people a kind of way out
- 14:26from that kind of horrific agony?
- 14:29And therefore we need physician assisted killing to help people
- 14:33in those stages. Now, I think it's important to
- 14:37mention, very important to mention that in almost every
- 14:41survey that's done on this, that kind of scenario, though, it's
- 14:45very persuasive, it's very sympathy.
- 14:47It produces a lot of sympathy, doesn't even make the top five
- 14:52reasons people actually request physician assisted killing.
- 14:55So Oregon has been keeping track of this for, you know, for a
- 14:57while. The top reason why people
- 15:00request physician assisted killing in Oregon is because
- 15:02they fear their loss of their autonomy.
- 15:05Also high on the list, fear of being a burden on others, fear
- 15:10of loss of enjoyable activities. Again, physical pain and
- 15:15suffering doesn't even make the top five reasons.
- 15:17So this is and, and also shouldn't we be, this is a this
- 15:21was a big focus of the UK debate.
- 15:23Shouldn't we be focused actually on better palliative care?
- 15:27In my time when I was at Fordham before my current job, I took
- 15:31some of my students to a service learning part of their bioethics
- 15:35course at Calvary Hospice Hospital in the Bronx run by a
- 15:40just an amazing physician who who said we never get any
- 15:44requests for people to end their lives here.
- 15:46We never are unable to control their pain here, in fact.
- 15:50And so we don't need to choose in fact, between being
- 15:53sympathetic to people in those very desperate, very real, very
- 15:58difficult situations. Let's not, you know, you know,
- 16:03paper over that. Let's deal with that.
- 16:04And it is in its full reality. Let's acknowledge that we can
- 16:08focus on getting people better palliative care and we don't
- 16:11need to kill them. We can kill the pain.
- 16:13We don't need to kill the patient.
- 16:14So walk us through what is palliative care and can you also
- 16:20explain the distinction between using as an example, morphine, A
- 16:24painkiller to alleviate suffering towards the end of
- 16:28life? And it can also sometimes
- 16:31increase the likelihood of death, is my understanding,
- 16:34because the patient may forgo food and water or other things
- 16:37because they're in a certain drug state.
- 16:40But how certain drugs to alleviate suffering may also
- 16:44have an effect of accelerating a near death that may be
- 16:49happening, but that is different, incredibly different.
- 16:53The the moral distinction is huge between that and then using
- 16:57drugs to ultimately kill a patient, using lethal drugs to
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- 17:53American meat delivered. Yeah, this is where some of if
- 17:57we're going to steal man the argument again in a different
- 17:59way. We can say actually what what
- 18:04many of us in the pro-life movement who want to defend the
- 18:08dignity of the human person at this stage of life would permit
- 18:11sometimes looks an awful lot like the very thing that we're
- 18:14criticizing. But it's important to make the
- 18:18distinction you just made. So let's make it when one is
- 18:22aiming at killing the pain of the patient via morphine, that's
- 18:27quite different from aiming at the death of the person via
- 18:29morphine, right? So if I were to say, OK, my
- 18:34relative is in terrible pain right now.
- 18:37I want to kill the pain in order to kill the pain.
- 18:39I get it. I got to give them X amount of
- 18:41work morphine, right? And I foresee, but don't intend,
- 18:45actually don't intend that this may in fact lead to their death
- 18:48or lead to their death being speed up, perhaps because it
- 18:52inhibits respiration or like you said, in conjunction with lack
- 18:56of nutrition and hydration, this may in fact speed up their
- 18:59death. But I don't intend it.
- 19:00I just merely foresee it. That can be totally legitimate.
- 19:04In fact is totally legitimate. Almost everyone sort of agrees
- 19:06with that. If, however, if, however, one
- 19:09isn't using the morphine to aim at the death of the patient,
- 19:12right, to say like I'm going to give you X amount of morphine so
- 19:15that you die, right, Right. I intend to kill you to save the
- 19:19pain. I'm not killing the pain, I'm
- 19:21killing the patient, right? That's the, that's the, that's
- 19:23the goal. Then that's deeply problematic.
- 19:26That's euthanasia, that's assisted suicide and that aims
- 19:28at the death of an individual. But you can see how if you're
- 19:32not attentive to that very important distinction.
- 19:34And here's, here's one way I like to think about the
- 19:36distinction. I sometimes call it the Komosi
- 19:39piss test. My students don't necessarily
- 19:41like it when I when I invoke this, but imagine that the
- 19:44person survives, right? Imagine the person survives in
- 19:47the first scenario. One is overjoyed, right?
- 19:50Because one was never aiming at the death of the person.
- 19:52They were aiming at killing the pain, right?
- 19:54Not the person. And the second scenario, if the
- 19:56person survived, 1 is not happy, right?
- 19:58Because the whole point of using that morphine was in fact to
- 20:01kill the patient. So that's not that.
- 20:04That test can sometimes be used to sort of illustrate the
- 20:06difference between what on the surface might look very similar,
- 20:09but is in fact totally morally different.
- 20:11Can you walk us through the difference between an
- 20:14extraordinary measure that someone may be getting to
- 20:19sustain their life versus foregoing that extraordinary
- 20:23measure? And that might be in a case, you
- 20:26know, you know, help breathing, you know, respiratory assistance
- 20:31and how in one case this can be completely listed and and
- 20:34someone could even pass away because they say no to an
- 20:38extraordinary measure. But in another situation, in
- 20:40context, this extraordinary measure is not extraordinary.
- 20:45And they would they would need to be given it and otherwise not
- 20:48giving the patient this care would be actually actually a
- 20:52violation of the Hippocratic Oath to protect that patients
- 20:56life. I think this is again where the
- 20:57context of what the patient is enduring or the state of the
- 21:01patient is crucial when deciding what are the ethical treatments
- 21:04and what are the non ethical treatments.
- 21:07Yeah, this is this is something I focus in on my my current book
- 21:10project in a very serious way as well.
- 21:13For the for your viewers or listeners who are Christians,
- 21:15it's probably no surprise to think about the fact that
- 21:19pursuing life at any cost, literally any cost, is an
- 21:22example of idolatry and not something we should be pursuing,
- 21:24right. Christ on the cross is a very
- 21:27classic example of this. The martyrs of old, of course,
- 21:30and the martyrs of recent vintage, of course too.
- 21:34So grasping for more life at any cost is not at all what pro
- 21:37lifers stand for. Quite the contrary.
- 21:40I mean, there may be very important considerations that
- 21:43would involve, again with the example we just used, right,
- 21:47Morphine to control a patient's life.
- 21:49Could one force, one could foresee that that would be the
- 21:51result of this, but but it's not what we're aiming at, right?
- 21:55So totally legitimate. Another example would be a
- 21:59ventilator, right? If somebody were to say like, I
- 22:02am not choosing to kill myself, I'm just choosing that I don't
- 22:05want my last remaining days to be on a ventilator.
- 22:09But I'm not even in my death. In fact, if you take me off the
- 22:13vent and I continue to breathe, that doesn't frustrate me.
- 22:15I'm not upset about that because again, I wasn't aiming at my own
- 22:18death. I was choosing.
- 22:19It's a choice about how to live, not a choice about how to die.
- 22:23Similar things could be said about the levels of say
- 22:25chemotherapy with end stage cancer in the back in the day,
- 22:29they would say, and sometimes now they suggest, you know,
- 22:32maybe if you move to a different climate, you could live a few
- 22:35more years, right? Or or have an extended time.
- 22:38Nobody is saying that you can't choose to stay at home in the
- 22:41home of your ancestors or where your kids or family is to die in
- 22:45their particular area, even though you might live a bit
- 22:47longer if you move down South or you move to a desert area or
- 22:49something like this. So there's tons of examples
- 22:52where we would say totally legitimate to choose to live
- 22:56this way foreseen but not intending death might come
- 22:58sooner. But as long as you're not aiming
- 23:01at death, that can certainly be justified.
- 23:03Now, let me also say though, and this is important, one can also
- 23:08by omission aim at death. So it's not just, you know,
- 23:11giving somebody a pill in their coffee is happening with a
- 23:13dementia patient. And the Netherlands is not just
- 23:16giving somebody an injection or this horrible new suicide
- 23:19suicide machine. I don't know if you're you or
- 23:21your listeners have seen this. One can aim at death by
- 23:25omission. I happen to be Catholic.
- 23:27The Catholic definition of euthanasia is an act or an
- 23:30omission, which of itself are by intention causes death.
- 23:33And I think intuitively many people of all different
- 23:36perspectives can say, well, I can aim at death by omission,
- 23:38right? I can choose not to help
- 23:39somebody so that they die, right?
- 23:42And so removing food and water, not not engaging with food and
- 23:46water, refusing to intubate somebody because they're
- 23:49disabled. That was something that happened
- 23:52during the pandemic. Unfortunately, in some
- 23:53circumstances, one can still aim at death by omission as well.
- 23:59And so the real key is to think hard about whether we're aiming
- 24:03at death or not. So what are some practical
- 24:07bright lines for how to do that in the medical field and then
- 24:11also for family members or friends?
- 24:14And you're trying to make judgment calls for your loved
- 24:17one about what treatments to say yes or no to.
- 24:20Are there bright lines that folks should be familiar with?
- 24:24And then as part of that, why is it always wrong to ever seek
- 24:27death for a patient? Give us that argument too,
- 24:29because I think we're, we've sort of been presupposing that
- 24:32as a, as a premise here in our conversation.
- 24:34But I do think making that case is important, especially in
- 24:36today's day and age. Yeah, well, I mean that gets to
- 24:40fundamental first principles about theology and philosophy
- 24:43and like what we believe to be ultimately true about reality.
- 24:46And if if we think that human beings are the kinds of
- 24:48creatures that have irreducible value, that have value that's
- 24:52not based on contingent things like how much you cost or how
- 24:56much relative ability you have or what sort of productivity
- 25:01level you have in society. One of the phrases I hate most
- 25:05is productive member of society. Can we please stop saying this
- 25:08is if this has some sort of indication for how much value
- 25:11someone has, whether you're a productive member of society,
- 25:14That's not why human beings have value.
- 25:16And aiming at the death of of people, making, making, trying
- 25:21to make them dead is a direct attack on that inherent dignity,
- 25:24right? And that's why so many people,
- 25:26including secular people, believe that we should never do
- 25:30this. And fundamental human equality
- 25:31says we should never do this, regardless of the circumstance
- 25:34in which a human being finds himself.
- 25:36Young, old, disabled, poor, rich, doesn't matter.
- 25:39Those are all accidental traits. The essential value is the
- 25:42dignity of a human person. And I'd also say in the context
- 25:47of healthcare, it adds another layer to this, which is
- 25:50healthcare providers are, it turns out, supposed to provide
- 25:55healthcare, right? They're supposed to aim at
- 25:57improving the health of their patients.
- 26:01There's no way in which we can describe killing patients,
- 26:04aiming at the death of their patients, as somehow consistent
- 26:06to what it means to provide healthcare.
- 26:08This is one of the big points I think we need to make about this
- 26:11in the United Kingdom and many other places is once you allow
- 26:14this to happen, once you say healthcare providers can kill
- 26:17their patients and still call it healthcare, you've lost any
- 26:20coherent sense of what healthcare actually is.
- 26:22I, I call it the Burger Kingification of healthcare.
- 26:26It's just if you get it your way, it's the fast food.
- 26:28It's like the customer's always right.
- 26:30There's no professional ends based understanding of what this
- 26:34even is anymore, right? It's just whatever you can
- 26:36provide. We can make a contract and you
- 26:38can give it to me and that's it. So we're it, We in fact will
- 26:41lose, We are in the process of losing the very notion of what
- 26:44it means to provide healthcare as a coherent concept at all.
- 26:48What are some of the bright lines that family members and
- 26:51people should be aware of when they're dealing with medical
- 26:54professionals, especially in a state like California where
- 26:56assisted suicide is legal now, it needs to be asked for within
- 27:01six months of the terminal diagnosis, meaning that they're
- 27:05told they're going to die in six months and needs to be asked by
- 27:07an adult over the age of 18. So there's not like you're going
- 27:09to be in a hospital in California and, you know,
- 27:11hopefully killed, but hopefully not killed by some nurse.
- 27:15That's not the state, at least not yet of the of of our state.
- 27:20But what are some things that you would recommend family
- 27:22members be on the lookout in the United States particularly and
- 27:26in other places? We have listeners from all over
- 27:27the world when they're dealing with medical professionals,
- 27:30especially for loved ones who are weak, whether they're having
- 27:34mental issues or they're physically suffering or near the
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- 28:26This is such an important question and it's a focus on my
- 28:30book. In fact, I just finished an
- 28:31appendix to the book last week where I was trying to layout
- 28:35some just like flip to the back of the book type things when
- 28:38your loved one gets sicker in the situation to describe
- 28:40precisely that. So I have a couple of these sort
- 28:42of ready to hand. One of them is is to is.
- 28:45It's not a bright line, but it's a more of a strategy.
- 28:47It's basically be the squeaky wheel, right?
- 28:50Be the loud person, be the person who is is not necessarily
- 28:54obnoxious, but the person who is asking questions, the person who
- 28:57is talking to the nurses, the person who is making sure that
- 29:01the social workers know exactly what's going on.
- 29:03The person who is willing to call an ethics consult, The
- 29:05person who knows their legal rights, the person who is
- 29:09informed on the current law in their state, right?
- 29:12And be the person that shows up right in the clinic in the in
- 29:17the care home. Don't be the person that just
- 29:20calls in once in a while. Let the staff know that you're
- 29:23going to be there and you're going to be present and that you
- 29:25want the wishes of your family member to be respected.
- 29:28Red flags would be those that, for instance, just are hostile
- 29:32to this sense of how to do things.
- 29:35So if you say something like, I believe food and water is not
- 29:41medical treatment, but just basic care for individuals.
- 29:45And so we will not be removing food and water from my mother.
- 29:49And people look at you like you got a third eye or something.
- 29:52That's that's a obviously a red flag.
- 29:55The more it's not always the case, but the more that the
- 29:58medical team talks about things like quality of life and you
- 30:03don't, you of course wouldn't want your loved one to be on all
- 30:05these machines and having those things.
- 30:07And again, based on what we just talked about you, one could of
- 30:09course choose to forgo those. But if that's not what the
- 30:14patient wants, if that's not what you and your family have
- 30:16decided you want, that sort of language can also be a red flag.
- 30:20I'd also come back to the PIS test or the upset test, like how
- 30:25it just try to play it out. Like if the person lived, would
- 30:30this be consistent with the goals of the procedures and
- 30:34other kinds of things that are being done here?
- 30:35If they live, would it be OK? Probably you're in the clear if
- 30:38if you get the sense that whatever is going on here is
- 30:42sort of aiming at the death would result in the person's
- 30:45death and the person survive. It wouldn't be consistent with
- 30:48what the medical team is is after.
- 30:51That's also a deep red flag as well.
- 30:52In your book, as you're doing the work for your book, Charlie,
- 30:56are you looking at the stories of families who have had
- 31:00basically bad things happen to them because of their medical
- 31:04professionals who were more interested in hastening death
- 31:07than they were about sustaining life?
- 31:11Yeah, absolutely. It's, I don't want to impugn a
- 31:15whole profession and I won't impugn a whole profession.
- 31:18There are plenty of very good physicians, nurses, medical
- 31:22teams, hospital administrators out there.
- 31:26And especially if one is in a Catholic hospital, 1 can point
- 31:29to the ethical and religious directives, whether one is
- 31:31Catholic or not, and say this is what you guys stand for and hold
- 31:34them accountable to those. That's another place to go.
- 31:37Maybe in terms of recommendations is if you have a
- 31:39choice, maybe you want to be seen in a Catholic hospital
- 31:41where you can hold the staff accountable to the ethical
- 31:44religious directives. But I will say in other
- 31:48contexts, and sometimes unfortunately in Catholic
- 31:51contexts as well, there are medical teams that will try to
- 31:54take advantage of the situation and try to say, especially when
- 31:59a person is vulnerable, when a person doesn't speak English,
- 32:02when a person is alone and not doesn't have someone advocating
- 32:05for them to kind of work their will to try to move things in
- 32:08the direction that they want it moved.
- 32:10And sometimes it's as subtle as just the way something is
- 32:12described again, like, well, you want it.
- 32:15You wouldn't want us to pound on your chest and put tubes inside
- 32:17you, right? And that might result in a DNRA
- 32:20do not resuscitate order that maybe wasn't explicitly given.
- 32:24Certainly this is what happens in the United Kingdom,
- 32:26unfortunately. Another example, it's tough to
- 32:29talk about, but it's real, is something called slow and show
- 32:33coding. So if a patient or their proxy
- 32:37says we want full code, you want everything done for this
- 32:40patient, which again is not required, but the legitimate
- 32:43choice of many people. Sometimes the medical team that
- 32:46disagrees with that full code will do what's called a slow or
- 32:50a show called. They'll pretend they're going
- 32:52full code. They'll pretend they're going
- 32:53through the process of of doing everything.
- 32:56But in reality, because they disagree with the decision,
- 32:59they're really aiming at the death of an individual by by
- 33:02omission, right? They're saying, I don't.
- 33:04It's not always the case, but in some cases they made the
- 33:06judgement. This person is too disabled,
- 33:09they're in too much pain. Who would want to live like
- 33:11this? And they're making their own
- 33:12judgements about that situation and then slower show code the
- 33:16situation the way in order to try to get the situation they
- 33:19want to get. Do you have stories?
- 33:21Have you talked to families who have experienced some of this in
- 33:24the US? Oh, yeah.
- 33:28As I think you know, I was on Tucker Carlson show recently,
- 33:31and as you may imagine, I got tons of emails after that
- 33:35appearance and the comments on the YouTube link for the show.
- 33:42Example after example after example after endless example of
- 33:46this. And here's maybe an important
- 33:48point we could drive home. So much of this is driven by
- 33:51judgments about, as I mentioned before, the level of disability
- 33:55of the individual, right? Maybe they have a catastrophic
- 33:58brain injury or they're a paraplegic or they have spina
- 34:00bifida or something like this. And I think it's just important
- 34:04to say most of these professions, and that's not
- 34:07limited to physicians, but those that are privileged come from
- 34:09levels of privilege, tend to make these judgments about their
- 34:12quality of life. In fact, there's some data to
- 34:15show that physicians rate the quality of life of their
- 34:17patients 2 points on a 10 point scale, less than the patients
- 34:21themselves. And and so almost all of these
- 34:27stories, Lila, were examples of from the beginning of life, but
- 34:31also the end of life, where very clearly there was an ableist
- 34:35judgement being made. And here is a very important
- 34:37point to drive home in light of that, our strongest allies in
- 34:41these fights very often are disability rights groups.
- 34:44Those who are willing to say, you know what you're telling us
- 34:46when you say people who've lost their autonomy, people have lost
- 34:50enjoyable activities, people who are fear being a burden on
- 34:54others should maybe think about killing themselves.
- 34:57You're talking about us. You're talking about our
- 34:59communities. And if that's the case, that is
- 35:02abhorrent. We tried to leave this whole
- 35:04notion behind after the Nuremberg trials, right?
- 35:06We have not left it behind. In fact, we're re engaging the
- 35:10horrific sort of logic of this. And I think just to go back to
- 35:13that one example of the person with dementia in the
- 35:15Netherlands, they were struggling.
- 35:18They they put the drug in the coffee.
- 35:21I did not kill them. The person was struggling,
- 35:23clearly not on board with whatever was happening.
- 35:26The family and the physician held them down and finished.
- 35:28The what? What does that mean?
- 35:29They finished the job. Well, I don't know exactly how
- 35:32they feel. That's why I want to be
- 35:34extremely careful about this. But, and so I'd have to go back
- 35:37to the actual article, but what I feel very comfortable saying
- 35:39is that they had to physically restrain the person to finish
- 35:42the job, whether it was giving them another drink or giving
- 35:44them an injection of some kind. But once we're in that
- 35:47territory, I mean, what, what are we talking about here?
- 35:50I mean, we're talking about something that's akin to the
- 35:53very things we put people on trial for in Nuremberg.
- 35:56And we said never again. And we're not there yet.
- 35:59Let's be clear, not every case is like that.
- 36:01That's a pretty dramatic example.
- 36:03But the very fact that we would go there and, and, and engage in
- 36:07that kind of logic. And we have a dementia crisis
- 36:09where this problem is just going to present itself more and more
- 36:13often. And, and especially cultures
- 36:15like the United Kingdom and Canada and certain states where
- 36:17they have a crisis of resources to care for people in these
- 36:21cases, there's going to be incredible amount of pressure to
- 36:24expand this to kill people with catastrophic brain injuries,
- 36:27people with dementia and other cases as well.
- 36:29There is I think an argument that some make that say, well,
- 36:33the hospital system wants to do endless procedures because they
- 36:37can build more for it and they make more money the sicker you
- 36:41are and in a sense the longer you live.
- 36:44Why, why would a hospital system or hospital staff and why
- 36:48increasing or many of them interested actually in, you
- 36:51know, potentially ending the life of the patient and not
- 36:53extending, continuing to extend care.
- 36:57And how does that fit with the narrative that, well, some of
- 37:00these people are and these systems are in it for the for
- 37:02money? Yeah.
- 37:04I mean, I think that's a legitimate critique in many
- 37:06circumstances and that that gets, I don't think we want to
- 37:09lose sight of the our previous discussion about idolatry and
- 37:12extending life at any cost and the possible incentives that
- 37:17some hospitals and healthcare providers might have to, to do
- 37:24precisely that. Unfortunately, there is all
- 37:27sorts of other pressures in other ways that that produce a
- 37:32very different kind of push for instance, in California and in
- 37:36in another in other places as well.
- 37:39The case I'm thinking about is in California, medical was asked
- 37:43to cover a particular kind of cancer treatment by a patient
- 37:48under medical. Medical said no, we're not going
- 37:51to cover that cancer treatment, but hey, we got physician
- 37:55assisted killing for you if you want.
- 37:59And again, if you think about the huge financial pressures
- 38:03that Medicaid and medical and other systems around the world
- 38:07are under, it has a certain kind of logic to it has a certain
- 38:10kind of understanding. Well, we're not forcing them to
- 38:13do it. We're just giving them the
- 38:13option, right? But again, if we if we think of
- 38:16people under the kind of pressure that they feel that
- 38:19lead them to this especially being a burden on others, then
- 38:24we can see it ahead. This has a pernicious logic all
- 38:26its own. So yes, in certain
- 38:27circumstances, the pressure would go one way, maybe towards
- 38:30overtreatment. We need to avoid that.
- 38:32But in many other circumstances, the pressure is going quite a
- 38:34different way. I was looking up the case you
- 38:37were referencing the coffee euthanasia case, and you had,
- 38:40you were right. I mean, this is a 74 year old
- 38:42woman who had Alzheimer's and early on in the disease she was
- 38:46saying she would want to die before going into a care home
- 38:50and they administered the initial drug in her coffee.
- 38:52She didn't die. She sat up and tried to pull
- 38:54away from the administering of a second drug.
- 38:57And they they held her down and forcibly killed her.
- 39:00And that's what caused so much consternation in the
- 39:03Netherlands, as it should, because someone in there, I mean
- 39:06someone in at the brink of death.
- 39:07I mean, I could imagine someone saying I would want to die, I
- 39:10would want to die if. But does that give them, first
- 39:13of all themselves the right to kill themselves or anyone else
- 39:15the right to kill them? Yeah.
- 39:19And two things, two more things to say about that.
- 39:21The Doctor Who did that was not convicted of any crime.
- 39:26A second thing is what is the presumption right?
- 39:29If if if somebody were to quote a quote wake up in that
- 39:34circumstance is clearly struggling, why would the
- 39:36presumption be to kill them, right?
- 39:38Why wouldn't the presumption be to at least stop right and say,
- 39:42well, we're in this new situation here.
- 39:43We thought the person would be dead from the drug in the
- 39:45coffee. They're clearly not now they're
- 39:47struggling. We have this new situation.
- 39:49Let's maybe evaluate it. Let's pause for a few days.
- 39:53Let's try to figure out how to handle the situation, maybe even
- 39:56try it if they have moments of lucidity, try to discern what it
- 39:59is they want Now, if it's different from what they wanted
- 40:02before, that wasn't at all right.
- 40:05The reaction, the reaction was, hey, it's time for them to die
- 40:08right now. And that, that's the kind of,
- 40:10and of course, it has to do with their disability, right?
- 40:12Like, how could it not? This is a judgement about the
- 40:14quality of life, of course, about people with Alzheimer's
- 40:17disease with later stage dementia.
- 40:19And again, I we have this crisis upon us now, Lila, right now we,
- 40:25we put these individuals essentially in way stations of
- 40:28death and care homes where they're desperately lonely.
- 40:30Sometimes they put them in the New York Times at an expose and
- 40:33said they often put them in what's called chemical
- 40:35straitjackets, which is essentially giving them
- 40:37antipsychotic drugs when they have no psychosis.
- 40:40But it because it keeps them docile, they do it anyway.
- 40:43And it double S their chance of death.
- 40:44It double S their chance of death and they do it anyway.
- 40:46But but Lila, in 20 years, the number of people with dementia
- 40:49is going to double in 30 years, if nothing is done, it's going
- 40:52to triple if we're already doing this now, right?
- 40:56And, and California is trying as as we speak, the people pushing
- 41:00the for assisted suicide expansion in California are
- 41:02trying to devise a way to expand assisted suicide in California,
- 41:06specifically to kill people with dementia, Alzheimer's disease.
- 41:09I mean, what are we going to do? I mean, I'm as pro-life as they
- 41:13come, as you know, but even I would look at the situation and
- 41:15say, well, what are my options here, right?
- 41:16I can waste away in this terrible place and watch cable
- 41:21news all day and maybe be talked to by a robot or and given a
- 41:25chemical straitjacket which keeps me docile or I could
- 41:29choose this, right? Those aren't great options, but
- 41:31I can understand it's wrong. But I can understand why someone
- 41:33would be tempted to have physician assisted suicide.
- 41:36But that is, that is the very definition of coercion, right?
- 41:39That is not a free choice. That is, that is a horrific
- 41:42coercion of people who are incredibly vulnerable.
- 41:45And we absolutely have to do better.
- 41:46But this, this dementia crisis is something we have to respond
- 41:49to. Otherwise, we're going to be,
- 41:52we're already in deep trouble, but we're going to be in really
- 41:53deep trouble if we don't find an answer to it.
- 41:56Well, and I think we're, I know you're going to come in studios
- 41:59in a few weeks, Charlie, we're going to deep dive that because
- 42:01I think that's the next essential question that I know
- 42:04you're, you've been studying and exploring.
- 42:06What are we going to do as Western civilization with not
- 42:09only, you know, a troubled healthcare system, you know,
- 42:12poor healthcare infrastructure at at large and the attitudes
- 42:15that plague the healthcare world, but also the declining
- 42:19populations, you know, we're having aging demographics.
- 42:23And So what happens when there's a ton of older folks and not
- 42:26enough younger folks to take care of them?
- 42:29And you've been on that one I've seen on social media having
- 42:33having your babies. We need to have people have
- 42:36more. Doing my part, Charlie, you're.
- 42:38Doing it, you're going for it, we need it.
- 42:40That's one of the that's one of my main conclusions in the book
- 42:42is that, you know, we can talk about improving care homes all
- 42:45we want. We could talk about
- 42:47reimbursement rates, we can talk about paying workers living
- 42:49wage. These are all important.
- 42:50But the end of the day, it's the family that we need to
- 42:52strengthen to address these foundational questions.
- 42:57And those questions about how we strengthen the family are
- 42:59existential foundational questions that are absolutely
- 43:02humongous on so many levels. But but without that too, I
- 43:05mean, that's that's maybe one very important take away here is
- 43:09whenever I speak to immigrant families in my area who have
- 43:13more intact families than we tend to have in the United
- 43:16States here, they're just aghast at the way that we treat our
- 43:19elderly, right? They can't believe that we would
- 43:21ever think about pushing their elderly loved ones away in the
- 43:25way that we do. They welcome them into their
- 43:27homes. They rearrange their whole lives
- 43:28to care for them. And you know, I'm not trying to
- 43:31hate on anybody here who doesn't choose to do that.
- 43:33There are all sorts of complicated reasons why we
- 43:34don't. But that's a foundational
- 43:37question. How do we strengthen the family?
- 43:38How do we have the bonds of the family and the extended family,
- 43:41not just a nuclear family, the extended family around to
- 43:45properly care for our loved ones who otherwise might be in fact
- 43:48will be pushed to end their lives via physician assisted
- 43:51killing if we don't find that that sort of foundational
- 43:53solution? Charlie, thanks so much for
- 43:56joining today. I know it's last minute because
- 43:58of the news breaking last Friday from the UK.
- 44:00How can people find your work? They can go to charleskamosi.com
- 44:05or find me on Twitter. X at C Kamosi CCAMOSY Thank you
- 44:10Lila Fairman. I'm looking forward to the in
- 44:12person conversation in a few weeks.
- 44:14Me too. Me too.
- 44:15Thanks so much, Charlie. Thanks so much for listening to
- 44:19this episode of the Lila Rose Podcast.
- 44:21Please share this episode with a friend or a family member to
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